Dear Irish government..

An open letter to the Irish government, 
I was looking for the right words to describe what it has been like to watch you all play God with something that you know very little about. I thought the words would be ‘angry’ or ‘exasperated’ but really, what I feel is frustrated and heart-broken. Aside from all of the hard evidence of Orkambi’s physiological effect, it has so much more to offer. You see for you, Orkambi is an annoyance that is costing you a lot of money (much like the solid-gold pensions of Brian Cowen and Bertie Ahern) but for so many people: mothers, fathers, brothers, husbands, children, the drug offers hope. If someone had offered me a drug that would improve my mother’s quality of life by even 5% I would have given a limb to ensure she got it. We are talking about the future of many children and adults alike. A drug that could make their day-to-day life easier. Can you put a price on that? You don’t have to sit at the bedside of your struggling child this Christmas eve, watching them fight for every breath. I can never explain just how soul-destroying it is to watch someone you love fade away like that. Don’t let any more CF patients fade away. It took years for organisations like Cystic Fibrosis Ireland fighting tooth and nail for basic facilities, basic healthcare needs and they did it. Don’t make us struggle for another five years before you see the light.
 
Regards,
 
A concerned citizen ashamed of her government and a heartbroken twenty-something who misses her mum.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s